Happy Prader-Willi Syndrome Awareness Month!
It is so exciting to see how many people are hosting events to celebrate our children with Prader-Willi Syndrome. Yesterday, the first two One Small Step 2011 walks took place. It is so exicitng watching all of our hard work start to become a reality.
The Foundation for Prader-Willi Research is also holding a contest to win an Apple iPad 2 in connection with the One SMALL Step event.
Here is the bulletin.....
FPWR and PWSA (USA) invite the PWS community to participate in our May Campaign for PWS Awareness month. Our One SMALL Step International event includes 47 locations world-wide and is targeted to fund phase one of the Research Plan jointly developed by the FPWR and PWSA (USA).
It’s easy AND you can win the new iPAD 2!How does it work?
1. Register and create your own page today: http://onesmallstep.fpwr.org/
2. Email your page to at least 5 people (including Tanya.johnson@fpwr.ca)
3. When Tanya receives your personal page, your name will be entered into our iPAD 2 draw
4. What’s the catch? The draw will only take place if 250 personal pages are created by May 31st.
Our PWS community is called to come together and to take one small step for PWS. Everyone is eligible, from any country, state, city or town – join one of our existing locations or sign up as a virtual walker – the choice is yours! Good luck – our lucky winner will be announced on June 1st!
The entire process takes a total of 5 minutes. To view an example of a personal page created by Tiffany in Doylestown, PA, click here: http://onesmallstep.fpwr.org/dw/users/tiffanymccauley/doylestown
Check out our video (This video is on my blog home page above the one of Ellie) from last year and find out how 10 people led 10 walks and raised $225 000!
Contact Tanya Johnson for more information: Tanya.johnson@fpwr.ca
I am proud to be one of the 10 people that led a walk last year and proud to be one of the 47 hosting a walk this year.
Hi
ReplyDeleteMy name is Jenna and I came across your site. Ellie is an amazing, courageous, strong and determined fighter. She is a brave warrior, smilen champ and an inspirational hero. I was born with a rare life threatening disease, and I love it when people sign my guestbook. www.miraclechamp.webs.com
Hi,
ReplyDeleteI have a quick question about your blog, do you think you could e-mail me?
Heather
Hi Heather,
DeleteWhat is your email?
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