While I was there I explained what Prader-Willi Syndrome is and how it is, and could, impact our family. She then told me about her infant son that died 20 years ago after receiving his 2 month immunizations. He suffered a fatal allergic reaction. After she worked through her grief she began lobbying for increased awareness of these side effects even appearing on 20/20 and testifying for congress to discuss the topic.
She then looked at me and said something that has stuck with me ever since....She said "We are Mother Warriors....you are a mother warrior for your daughter."
When we received Ellie's diagnosis almost 2 years ago I vowed that I would do everything in my power to make Ellie's life the best it could possibly be. To me, this means raising money for research. I want to get as much money to the researchers as fast as possible so they can research faster. I became a mother warrior the moment she received her diagnosis. I am engaged in a battle against the effects of Prader-Willi Syndrome.
I am Ellie's mother warrior....I always will be and will keep fighting for her independence by raising money. I am not a scientist so I can't find the cure myself so the next best thing, in my opinion, is to do as much as I can to encourage researchers to dig deeper into this disorder until a cure is uncovered.